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03.05.2024 | RESEARCH

Transcultural adaptation to Spain of the CDPQOL questionnaire specific for coeliac children

verfasst von: Josefa Barrio-Torres, Tomás Sebastián-Viana, Cristina Fernández-Pérez, Cristina Pérez-Fernández, Beatriz Martínez-Escribano, Carolina Gutierrez-Junquera, Enriqueta Román, María Luz Cilleruelo

Erschienen in: European Journal of Pediatrics

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Abstract

This study aimed to translate, cross-culturally adapt, and validate the CDPQOL questionnaire, a coeliac disease (CD)-specific paediatric health-related quality of life (HRQoL) instrument (CDPQOL), in Spanish children with CD. The CDPQOL questionnaire has two versions for children aged 8–12 and 13–18. Translation and linguistic validation were performed following an international consensus process. Internal consistency was calculated using Cronbach’s alpha and McDonald’s omega coefficients, and convergent validity was assessed with average variance extracted (AVE). Confirmatory factor analysis (CFA) and exploratory factor analysis (EFA), when necessary, were carried out to assess the construct validity. A total of 235 children were included. In the 8–12 age group, a change in the distribution of items to a new structure of three dimensions (negative emotions, food feelings and social interaction) was required. In this new model, CFA supported the fit of the model (χ2/gl = 1.79, RMSEA = 0.077 (IC 95% 0.05–0.100), CFI = 0.969, TLI 0.960, SRMR = 0.081) and Cronbach’s alpha and McDonald’s omega coefficients were > 0.7 in all three dimensions. In the 13–18 age group, CFA showed that all fit indexes were acceptable (χ2/gl = 1.702, RMSEA = 0.102 (IC 95% 0.077–0.127), p < 0.001, CFI = 0.956, TLI = 0.947, SRMR = 0.103) and Cronbach’s alpha and McDonald’s omega coefficients were > 0.7 in all three dimensions, except for uncertainty dimension.
    Conclusions: The Spanish version of the CDPQOL questionnaire is a useful instrument to assess quality of life in coeliac children whose native language was Spanish spoken in Spain, with changes in item distribution in the younger age group questionnaire.
What is Known:
• The first specific questionnaire for coeliac children, Dutch Coeliac Disease Questionnaire (CDDUX), which focuses on diet, was translated into Spanish and validated allowing to evaluate the HRQoL of Spanish coeliac children.
• Spanish Children and parents feel the disease had no substantial negative impacts on patient HRQoL using this questionnaire, similar to that observed with other countries.
What is New:
• The age specific for CD children (CDPQOL) was elaborated in the USA and focuses on other aspects not evaluated by CDDUX such as emotional and social issues related to living with CD.
• The CDPQOL was translated into Spanish and validated allowing it to be used to assess Spanish coeliac children’s QoL.
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Metadaten
Titel
Transcultural adaptation to Spain of the CDPQOL questionnaire specific for coeliac children
verfasst von
Josefa Barrio-Torres
Tomás Sebastián-Viana
Cristina Fernández-Pérez
Cristina Pérez-Fernández
Beatriz Martínez-Escribano
Carolina Gutierrez-Junquera
Enriqueta Román
María Luz Cilleruelo
Publikationsdatum
03.05.2024
Verlag
Springer Berlin Heidelberg
Erschienen in
European Journal of Pediatrics
Print ISSN: 0340-6199
Elektronische ISSN: 1432-1076
DOI
https://doi.org/10.1007/s00431-024-05589-1

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